Caregiver Support: Mom, Are You There? Finding a Path to Peace through Alzheimer's, Kathleen A. Negri, Wheat Ridge, CO, forget-me-not press (2005). A Dignified Life: The Best Friends Approach to Alzheimer’s Care, A Guide for Family Caregivers,Virginia Bell, M.S.W. & David Troxel, M.P.H., Deerfield Beach, FL, Health Communications, Inc. (2002). Chicken Soup for the Caregiver’s Soul, Stories to Inspire Caregivers in the Home, the Community and the World, Jack Canfield, Mark Vistor Hansen and LeAnn Thieman, L.P.N., Deerfield Beach, FL, Health Communications, Inc. (2004). Alzheimer’s A to Z, Secrets to Successful Caregiving, Jytte Lokvig, BA, MA, Santa Fe, NM, Endless Circle Press (2002). The 36-Hour Day, A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life, Nancy L. Mace, M.A. and Peter V. Rabins, M.D., M.P.H., New York, NY, Warner Books (2001). Dancing on Quicksand, A Gift of Friendship in the Age of Alzheimer’s, Marilyn Mitchell, Boulder, CO, Johnson Publishing (2002). Parent/Child Relationships: Cutting Loose: An Adult’s Guide to Coming to Terms With Your Parents,Howard M. Halpern, Ph.D., New York, NY, Simon & Schuster (1976). How Did I Become My Parent’s Parent?, Harriet Sarnoff Schiff, New York, NY, Viking Penguin, a division of Penguin Books (1996). Thinking Strategies for Caregivers: Mom, Are You There? Finding a Path to Peace through Alzheimer's , Kathleen A. Negri, Wheat Ridge, CO, forget-me-not press (2005). You Can Heal Your Life, Louise L. Hay, Carlsbad, CA, Hay House, Inc. (1984). Coping with Alzheimer’s: A Caregiver’s Emotional Survival Guide, Rose Oliver, Ph.D. and Frances A. Bock, Ph.D, North Hollywood, CA, Melium Powers Wilshire Book Company (1987). On-line Resources:
Local Resources for Caregivers in Colorado: Rocky Mountain Chapter of Alzheimer's Association
For 25 years, the Colorado Chapter has lead the fight against Alzheimer's disease and related disorders by increasing the understanding of dementia and its impact on family and community, providing information and support for those affected, and promoting the advancement of research. The Alzheimer's Association Colorado Chapter is the premier source of information and support for over 63,000 Coloradoans with Alzheimer's disease. Families throughout the state have access to support services through regional offices in Denver, Colorado Springs, Pueblo, Durango, Grand Junction, Fort Collins, and Greeley. | www.alzrockymtn.org | Joni Seivert's Connections Unlimited
Joni Seivert helps Colorado elders, people with special needs, and their families explore the many housing and service options available. With Joni’s expertise and network of providers, she helps consumers tap into new solutions that can solve important life issues before a crisis occurs. Joni is known for her holistic approach to problem solving and advocacy. Whether you are looking for in-home services, senior housing, handymen, senior products, legal and financial services, hospice or other related senior services, Joni can identify solutions quickly and help you to make the right connections. | www.jonisconnections.com | National Resources for Caregivers:* The ALS Association (ALSA)
is a national not-for-profit voluntary health organization dedicated solely to the fight against ALS, or Amyotrophic Lateral Sclerosis (often called Lou Gehrig's disease). The mission of The ALS Association is to find a cure for and improve the lives of those living with ALS.
Phone: 818-880-9007. | www.alsa.org | The Alzheimer's Association
a national network of chapters, is dedicated to advancing Alzheimer's research and helping those affected by the disease. The Association also provides education and support for people diagnosed with the condition, their families and caregivers. Advocacy is a major component of their mission, serving as a voice in the capitals of every state, congressional offices and the White House. Phone: 800-272-3900. | www.alz.org | ALZwell Caregiver Support
is dedicated to helping dementia caregivers to find understanding, wisdom and support throughout the caregiving journey. | www.alzwell.com | American Association of Retired Persons (AARP)
offers many free pamphlets and caregiver help. Phone: 888-687-2277. | www.aarp.org/life/caregiving | Caregivers-USA
is a free, nationwide database that puts people in touch with more than 40,000 caregiving and caregiver support services nationwide. | www.caregivers-usa.org | Children of Aging Parents (CAPS)
is a 25-year-old non-profit organization dedicated to enhancing the lives of family caregivers through information and referral services, educational outreach and the establishment and facilitation of support groups. Phone: 800-227-7294. | www.caps4caregivers.org | Center for Advocacy for the Rights and Interests of the Elderly (CARIE)
provides free telephone consultation, which includes counseling and problem resolution services to the older person, their caregivers and professionals. Phone: 215-545-5728. | www.carie.org | The Compassionate Friends
offers support groups and information for bereaved family members, and emphasizes positive resolution to grief. Phone: 708-990-0010. | | Eldercare Locater
is a public service, operating in conjunction with the U.S. Administration on Aging that provides referrals to local community agencies for home care, respite services, adult day care, senior centers, legal assistance, home-delivered meals and transportation. Phone: 800-677-1116. | www.eldercare.gov | ElderCare Online
provides an online community where supportive peers and professionals help caregivers improve quality of life for themselves and their aging loved ones. | www.ec-online.net | ElderLawAnswers
supports seniors, their families and their attorneys in achieving their goals by providing the best information on the Internet about crucial legal issues facing seniors, a network of highly qualified elder law attorneys nationwide and online practice tools for elder law attorneys. Phone: 866-267-0947
| www.elderlawanswers.com | Faith in Action
an interfaith volunteer caregiving program, invites Americans of every faith to work together to improve the lives of their neighbors of all ages with long-term health needs. There are nearly 1,000 Faith in Action programs nationwide. Phone: 877-324-8411. | www.faithinaction.org | Family Caregiver Alliance
offers programs at national, state and local levels to support and sustain caregivers. FCA is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they need and deserve, and championing their cause through education, services, research and advocacy. Phone: 800-445-8106. | www.caregiver.org | Leeza Gibbons Memory Foundation
establishes Leeza's Places across the country for support, research, a continuum of care, political advocacy, acceptance and wellness. Leeza's Place serves as an "oasis" for education, empowerment and energy for caregivers and their recently diagnosed loved ones. Phone: 855-655-3392. | www.leezasplace.org | Meals on Wheels of America
provides hot, nourishing meals to elderly and disabled persons who are unable to provide meals for themselves. The meals, daily contact by caring volunteers, and professional case management allow frail, homebound persons to remain in their own homes where they want to be. Phone: 703-548-5558. | www.mowaa.org | National Alliance for Caregiving
provides support to family caregivers and the professionals who help them and increases public awareness of issues facing family caregivers. Resource guides and information are available online and in print. | www.caregiving.org | National Council on Aging
is a national network of organizations and individuals dedicated to improving the health and independence of older persons. The web site includes many publications of interest to caregivers. Phone: 800-373-4906. | www.ncoa.org | National Family Caregivers Association (NFCA)
is the only constituency organization that reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers. Phone: 800-896-3650. | www.thefamilycaregiver.org | National Hospice & Palliative Care Organization (NHPCO)
is committed to improving end-of-life care and expanding access to hospice care with the goal of enhancing quality of life for people living with a life-limiting illness and their loved ones. NHPCO can provide information on hospice and help people locate a hospice or palliative care provider in their area. Phone: 800-658-8898. | www.hospiceinfo.org | Rosalynn Carter Institute for Caregiving
promotes the mental health and well-being of individuals, families, and professional caregivers through research, education and training. Its focus is on generic caregiving that pertains to all caregivers across various illnesses and disabilities; incorporation of both lay and professional points of view; and collaboration among front-line caregivers, academicians and students to improve the caregiving process. Phone: 912-928-1234. | www.RosalynnCarter.org | Today's Caregiver
magazine includes up-to-the-minute advice on topics such as incontinence, grandparent caregiving, mobility, Alzheimer's, cancer and ALS caregiving, as well as interviews with celebrity caregivers. The magazine produces The Fearless Caregiver book and conferences and hosts an online caregiver community. Phone: 800-829-2734. | www.caregiving.com | Well Spouse Foundation
is an association of spousal caregivers who form friendships with other caregivers in similar situations. Phone: 800-838-0879. | www.wellspouse.org |
*Selected resources reprinted with permission. Jack Canfield, Mark Vistor Hansen and LeAnn Thieman, L.P.N. (2004).
Chicken Soup for the Caregiver’s Soul, Stories to Inspire Caregivers in the Home, the Community and the World, (pp. 353-355), Deerfield Beach, FL, Health Communications, Inc.
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